Scanxiety

I went to visit my oncologist. She ordered a PET Scan for the end of September. This will be the first time I've been scanned since just after I finished chemotherapy. During my surgery they removed the tissue and tested it, so I know how well the chemo shrunk down the tumor in my breast tissue and lymph nodes. This scan will show that it did a bang up job keeping the cells from spreading anywhere else.

The worst part of the PET Scan is the diet. I have to be on a zero carb, high protein diet for the two days prior to the test. I can only eat meats, hard cheese, and a few vegetables. No fruits, no Diet Coke, no alcohol. It's rough. Then they inject me with radioactive dye, so I will be radioactive for a few hours after the test. The sheet that they gave me said "Sorry but no, you will not glow."


In addition to the PET Scan, they recommended that I get checked out by a dermatologist (always a good idea) and my optometrist, because being BRCA1+ is also linked to an increased risk of melanoma (apparently you can get melanoma in your eyes, I never knew that). Heap them on to the pile of doctors visits I already have.

16 down, 12 to go...

More than halfway through my radiation treatments! I'm starting to get the pink "sunburned" square on my left side. It doesn't hurt very much except when the seatbelt rubs against my skin. My eyes keep getting heavier and heavier, so fatigue is setting in. I slept 10 hours last night and could still go for a nap.

Yesterday I had a checkup with the oncologist. She says it looks like I'm golden. She asked if it felt like I was cured, I said maybe it will when I'm done with radiation treatment. It's hard to switch mentality from "I have cancer" to "I had cancer", especially when there is so much fighting left to do.

My oncologist said to me "You're only 28? That's disgusting. Well, 29 should be a better year for you."

It's the end of the chemo as we know it...

... and I feel fiiiiine.

I've been criminally late at updating my blog lately. The fatigue has been hitting me through my past few treatments. First, my blood cell counts are low (so low that they almost didn't give me my last chemo treatment). Secondly, I'm having hot flashes at night waking me up every few hours. Not fun, not fun at all!

Well, I've been recovering from my last chemo (woo woo!). The achiness and neuropathy were just as bad as previous treatments, but have been fading away. As I said, my fatigue is pretty bad but I anticipate that it'll get better soon as my body rebounds from my last round of toxic chemicals. In any case, the chemo was a success and shrunk the tumor down an incredible amount. Hooray for modern medicine!

Hair grows about a half inch a month, so it'll be quite awhile until my hair grows back. I'm kind of relieved about this, because after my surgeries I won't be able to lift my arms to wash my hair. No hair means problem solved!

So the question on everyone's mind is... What's next??

The plan: bi-lateral mastectomy, radiation, reconstruction. A bi-lateral mastectomy means they are going to completely remove both breasts. Hey, the things tried to kill me... I have NO attachment to them now. Why, you ask, a bi-lateral mastectomy if the tumor shrunk down to practically nothing (I'm a mind reader today, I know)? That has to do with factors like the type of breast cancer I had (see my previous post on Triple Negative), the initial size of the tumor (11 cm), and my age.

I met with my surgeon and a few plastic surgeons to try to hash this all out. I currently don't have a date set yet for surgery, but will keep everyone posted!

Chemo 7 and follow-up

Chemo #7 went off without a hitch. I felt nauseous after the pre-meds so they gave me Ativan and then it was night night time for Cristal. The next few days I spent in Atlanta for the Young Survival Coalition's Conference. I have had the same symptoms as the past few times... achiness, neuropathy, fatigue. My red and white blood cell counts are still low.

At my check-up, my oncologist ordered a couple of scans. First there was the CT Scan of my head. There is a chance of metastasis to the brain with Triple Negative breast cancer (that means that the cancer cells decide to take a family trip up to my brain, like what they see and permanently move in). Mine came back all clear. They didn't tell me whether they had found any grey matter in that head of mine though... hm...

Then there was the ever comprehensive (and ever expensive) MRI. The basic conclusion from the MRI was that the chemo worked (wasn't it supposed to?). They compared my previous scans to the current ones and the tumor had shrunk substantially. There were a few spots that still "lit up" on the screen.

So now I'm planning my surgery and reconstruction. I'm planning on a bi-lateral mastectomy (the suckers tried to kill me, chop 'em off!). It'll be about a month after the end of chemo. I'm still looking at reconstruction options.

New news is new news.

I had a very eventful checkup with the oncology group. I'm very low on iron, so they ordered me to eat a steak for dinner. Deal! They said it was time to schedule an appointment with my surgeon. I also have a "treatment summary" appointment scheduled with my oncologist.

Since my veins have been disappearing and being difficult (it took three nurses four tries to stick me at my last chemo), we decided to have a PICC line installed.

Now, the most important part. I've been very achey with the Taxol and Abraxane. It makes it uncomfortable for me to sleep so I am exhausted. Then, there is the neuropathy (numbness and tingling in my fingers and feet). The neuropathy is a concern because instead of getting better over time, it only gets worse (and may be permanent). With the Abraxane, the neuropathy is more likely to reverse. The other option is to take smaller doses in more frequent treatments. This would mean I'd have three weeks of treatments, a week off, and then three more weeks of treatments, thereby extending my chemo for a few weeks. So the question is... if you had to get sick would you prefer a) a flu with a fever and the whole bit, completely knocking you out for two days, or b) a cold with a sore throat and the sniffles, but still being able to do most things for two weeks (and no cheating and saying you don't get sick or you get ebola in this hypothetical situation)? I guess I'd pick the flu. I'll just tough out the chemo for two more treatments (the side effects aren't unbearable, just uncomfortable).

All's well on the western front

I went in for my checkup this morning and everything is going great. The nurse practitioner could not even feel the tumor at all, and this is just after 3 treatments. Of course we're going to finish up with the remaining five because after we kill the cancer we're going to kill it a few more times for good measure.

The nurse practitioner was really pleased at how little of the side effects I've been seeing. My energy levels have been good. The nausea hasn't been too bad. My white and red blood cell counts are really good. I haven't had fevers. She says I'm a testament for someone else going through treatment. I guess I'm the 'best case'.

She also told me that the current cocktail mix (AC) is usually worse on people, so that means one more of the bad kind and then smooth sailing. I might have a bad reaction to the Taxotere, but since I've been kicking this like a rock star so far I'm banking on things going well.